SPIROSKI SCHOLARLY FOUNDATION

In partnership with Macedonian Medical Student Association MMSA Citizen Association Skopje and the SOMA Student Organized Medical Association Shtip

Total budget: MKD 2,550,000

Timeframe: 15 months

CONSTITUENTS

Voluntary bone marrow donors: young citizens (students) and adult citizens aged 18-60 from the bigger communities: Macedonians, Albanians, Roma, Serbs, Turks, Vlachs, etc.

ON THE PROJECT SUPPORTED BY CIVICA MOBILITAS

NFS – Bone marrow donation program

BACKGROUND

Treatment of the most severe hematological diseases (leukemias), some other severe diseases (aplastic anemia) and several rare diseases (immune system deficit) can be successfully cured with bone marrow transplantation. The bone marrow donors should be, is possible, completely identical to the main tissue matchable complex (HLA), semi-identical or partially identical. The most frequent bone marrow donors are brothers or sisters (if identical), but the smaller and smaller number of children has rapidly decreased this possibility for treatment of the most severe hematological diseases with bone marrow transplantation.

By including bone marrow donors from all communities in the country, there will be awareness raising of a bigger number of citizens and in this way the CSOs (especially the students) will improve their functioning not only to complete their studies, but also to be part of the joint readiness for assisting those that mostly need help.

GOALS AND RESULTS

Goal:

Awareness raising for donating cells, tissue and organs.

Objectives:

Establishing Bone Marrow Program.

RESULTS

• A functional web portal for Bone Marrow Donating Program, in English, Macedonian and Albanian;
• Adjusted standards with those of the World Bone Marrow Donor Association (WMDA) to prepare educational materials and signed agreement for bone marrow donation;
• Printed materials and prepared electronic annexes to organize donor actions;
• Public debate on the mechanisms for bone marrow donation in the civil and government sector;
• Donor actions to recruit voluntary bone marrow donors;
• Registered bone marrow donors.

ACTIVITIES

1. Creating a web portal for a Bone Marrow Donation Program in English, Macedonian and Albanian;
2. Implementation of the standards of the World Bone Marrow Donor Association (WMDA) to prepare educational materials and signed agreement for bone marrow donation;
3. Printing materials and preparing electronic annexes to organize donor actions;
4. Public debate on bone marrow donation in the civil and government sector;
5. Involving student and other interested CSOs to recruit voluntary bone marrow donors;
6. Including donors from Macedonia and from the communities (Albanians, Roma, Serbs, Turks, Vlachs and others) in the bone marrow donor database.

Web page